"....Imagine you've been diagnosed with an
incurable genetic disease and you are told you will not only lose your ability
to walk and move your arms, but you will die between now and the next 18
months. What would you do? " - Avery Lynn Canahuati's blog,
www.averycan.blogspot.com
Follow Avery Lynn Canahuati's blog.
Avery Lynn Canahuati was born last year. On Friday,
April 6, 2012 her parents found out from a neurologist that she had SMA-type 1
(Spinal Muscular Atrophy). Follow Avery's blog, and read about her bucket
list of things she is already accomplishing in her young life, such as visit
her dad's alma mater and where her parents fell in love. One of the
purposes of the blog is to raise awareness for SMA and for doctors to include
it in genetic testing.
Other relevant links:
--TC Mama
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